We'll I'm a bit late at updating this one, but I did end up in hospital and underwent the new treatment which seemed to last me quite a while this time. Much better results than the standard electrocauterization.
They did the procedure in September 2008, and minor bleeding resumed after about 3 weeks. Nothing too major. I did get some muck out about 2 days after the op - but I guess that was normal.
I lasted around 3 months this time before the bad bleeding came back.
I've been managing up until January 2009 when the severe bleeding returned. I sort of rate the bleeding into categories. Normal bleeding lasts 10-20 minutes - a good bleed stops after 5 or so minutes. I dont mind them at all. The problem ones are 30-40+ minutes; with the ambulance calling ones / hospital ones much longer than that.
Since the regular cauterization ops the bleeds are more managable.
I've only started the 40 - 120 minute bleeds lately. Feels like a waterfall - just gushing as soon as I release the pressure. So the trick is DONT release the pressure!!!
My nose goes numb after about 20 minutes so I usually release the pressure a bit to see if it's slowed (and to give my nose a break!). I think I even got pins and needles in my nose once as I was holding onto it so tight!
An interesting web site (well at least I think so...) about me & the issues I am facing at the moment. My theory is that talking (blogging) about it may help me understand where I am at - and help others that maybe going through the same thing as me too... Living with HHT.
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Blood Type O+
I'm glad to see I'm one of the most common blood types! see this info - http://www.giveblood.redcross.org.au/page.aspx?IDDataTreeMe...

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I've done a little bit of googling on this equipment and it does seem to be a very recent innovation. see http://www.mlt-laser.de/html/h...
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Anyway, the trip to hospital was interesting. Very different to my local hospital. I thought it was very disorganized & was very worryin...
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Last Thursday I had the CT scans done. Some of them were done with an injection - I've had that before, where the machine injects the fl...
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